SKC podcast
#04 with Prof. Dr. Helge Hebestreit, head of the Center for Rare Diseases Northern Bavaria
In podcast episode #04 Centers - big impact, small funding, he discusses with Prof. Schönermark the Bavarian, German and European organization and funding of centers for rare diseases and the benefits they create for patients and their families, especially in the context of case conferences and clinical trials.
You can find the Profcast #04 Centers - big impact, small funding in German language on Spotify and Apple Podcast. Listen now!
About the Profcast
Our SKC podcast series "The Profcast - rare diseases and their therapies" aims to address the special circumstances of patients with rare diseases, the associated medicine and the challenges for research, development, economics and reimbursement. For this purpose, Prof. Matthias P. Schönermark, M.D., Ph.D., managing director of SKC, speaks with patient representatives, payers, clinicians and scientists as well as industry representatives and also focuses on specific diseases. The word Profcast is a reference to professionals or professors, whom he welcomes as his guests.
The ambition behind this is to give an appropriate space to rare diseases and their treatment sine ira et studio. After all, the motto of the Rare Disease Day states it so aptly: "Rare is many". It is estimated that 4 million people in Germany and 300 million people worldwide are affected by a rare disease. In keeping with the Rare Disease Day, which traditionally takes place on the last day of February, the Profcast is published on the last day of a month.
About the author
Founder and Managing Director
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