SKC podcast

In our podcast series Profcast "Rare diseases and their therapies", she explains why her profession is a rather rare one and discusses with Prof. Matthias P. Schönermark, M.D., Ph.D. how she supports the complex care of children with the rare skin diseases epidermolysis bullosa and congenital ichthyosis.

You can find Profcast #07 Outreach Nurse - a profession far too rare on Spotify and Apple Podcast (in German language only). Listen now!

For more information on donating to the children's and youth hospital AUF DER BULT, visit https://www.hka-hannover.de/spenden.

About the Profcast

Our SKC podcast series "The Profcast - rare diseases and their therapies" aims to address the special circumstances of patients with rare diseases, the associated medicine and the challenges for research, development, economics and reimbursement. For this purpose, Prof. Matthias P. Schönermark, M.D., Ph.D., managing director of SKC, speaks with patient representatives, payers, clinicians and scientists as well as industry representatives and also focuses on specific diseases. The word Profcast is a reference to professionals or professors, whom he welcomes as his guests.

The ambition behind this is to give an appropriate space to rare diseases and their treatment sine ira et studio. After all, the motto of the Rare Disease Day states it so aptly: "Rare is many". It is estimated that 4 million people in Germany and 300 million people worldwide are affected by a rare disease. In keeping with the Rare Disease Day, which traditionally takes place on the last day of February, the Profcast is published on the last day of a month.