National conference on rare diseases (NAKSE)

28 - 29.09.2023
More research, therapies, information and knowledge, fast routes to the right diagnosis, adequate care, support in the healthcare jungle and in everyday life: How can we concretely help people with rare diseases so that they can live longer and better? - The National conference on rare diseases - NAKSE for short - is exploring this question.
Berlin, DE, 28 - 29.09.2023

For this purpose, representatives of patient organizations, clinics and centers for rare diseases, science and research, health insurance companies, the pharmaceutical industry and politics will come together in Berlin on September 28 and 29, 2023. We at SKC aim to support patients with rare diseases in gaining access to effective treatment. Dr. Ingo Hantke, manager market access, Steven Krüger, medical writer and Prof. Matthias P. Schönermark M.D., Ph.D., founder and managing partner, have holistically examined the topic "Orphan vs. non-orphan drugs in Germany - Is there really a need for adjustment in the benefit assessment?". We are already looking forward to presenting the scientific results with a poster during NAKSE. You can download the poster free of charge here.

Drugs for rare diseases, so-called orphan drugs, and their specific challenges in market access are among our core competencies. Stay up to date with our orphan tracker and our podcast "The Profcast - rare diseases and their therapies". We are the market access special forces.

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Get in touch

Ihr Ansprechpartner Dr. rer. nat. Ingo Hantke
Dr. rer. nat. Ingo Hantke
M. Sc. Life Science
Fon: +49 511 64 68 14 – 0
Fax: +49 511 64 68 14 18

Orphan Drugs


Orphan drugs and the specific market access challenges are at the core of our expertise.
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