SKC podcast

#03 with Dr. Christine Mundlos, vice executive director of the German Alliance of Chronic Rare Diseases (ACHSE e.V.)

Thu, 2022 / 06 / 30
Dr. Christine Mundlos is vice executive director of the German Alliance of Chronic Rare Diseases ( Allianz Chronischer Seltener Erkrankungen, ACHSE e.V.) and acts as the voice for patients with rare diseases in the umbrella organization of more than 130 patient self-help organizations.

In podcast episode #03 The voice of rare disease patients, she discusses with Prof. Schönermark how ACHSE enables patients to help themselves, how physicians can receive rare disease consultations at ACHSE, how Germany can learn from Europe, and how a structured patient pathway and artificial intelligence will improve the future of rare diseases.

You can find Profcast #03 The voice of rare disease patients in German language on Spotify and Apple Podcast. Listen now!

About the Profcast

Our SKC podcast series "The Profcast - rare diseases and their therapies" aims to address the special circumstances of patients with rare diseases, the associated medicine and the challenges for research, development, economics and reimbursement. For this purpose, Prof. Matthias P. Schönermark, M.D., Ph.D., managing director of SKC, speaks with patient representatives, payers, clinicians and scientists as well as industry representatives and also focuses on specific diseases. The word Profcast is a reference to professionals or professors, whom he welcomes as his guests.

The ambition behind this is to give an appropriate space to rare diseases and their treatment sine ira et studio. After all, the motto of the Rare Disease Day states it so aptly: "Rare is many". It is estimated that 4 million people in Germany and 300 million people worldwide are affected by a rare disease. In keeping with the Rare Disease Day, which traditionally takes place on the last day of February, the Profcast will always be published on the last day of a month.

 

About the author

Ihr Ansprechpartner Univ.-Prof. Dr. med. Matthias P. Schönermark
Univ.-Prof. Dr. med. Matthias P. Schönermark
Gründer und Geschäftsführer
Fon: +49 511 64 68 14 0 – 0
Fax: +49 511 64 68 14 18
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